Missing Pieces

More barriers exposed.  Some progress.  I am getting ready to transition back to “work” which will be at least 60% remote for me this year.  I feel I have the skills set to be successful this year with this modality (online instructional delivery), so really all I’m waiting for is direction and expectations.  I told my principals this morning in an introductory zoom call, “I’m good, I know what to do” and I really meant it.  Just waiting for marching orders.  School Board is all over the page with chaos.  It’s so messy, which I expected, but a completely different set of challenges than I thought we’d face.  I know we will be ok because I’m part of a board that wants what’s best for kids.  We just won’t always agree on how best to get there.  With the family, the oldest is back in Athens for senior year at OU.  The rest are preparing to return to their respective local college programs.  Hubby is back to his “normal” job responsibilities at the church.  He keeps doing his daily devotional which are so helpful for me. I’m thinking of transitioning from FB to Instagram.  Matt did and it seems to be far less toxic.  Finally Ben...we got denied for insurance coverage for his Autism therapy, so that sucks.  Now we’re in the process of applying for a Medicaid waiver.  We are supposed to start with the Department of Developmental Disabilities, but every time I try to find a “starting point” I’m lost on another webpage.  Mama bear is not happy, but not surprised either.  Why should we have expected that an Autism diagnosis would be the “be all end all” of solving our issues.  It just opens more doors for confusion & denials.  😩. We are trying all of them to try and get some resources.  I got Ben enrolled in a sleep study for kids with ASD.  It should’ve occurred to us sooner, but didn’t, that Ben doesn’t sleep well.  In discussing this with other parents of kiddos on the Spectrum, it seems to be a somewhat common occurrence.  We may get some answers, we will get referred to another study when this one’s over that will provide interventions and possibly even treatments.  This is what we hope to get from it.  Meanwhile, we need the DODD and a caseworker assigned, then we need the Medicaid waiver.  Stupid me...I thought working full time in America with a quality health insurance plan, I’d be able to get treatments my kid needs for his disability.  No such luck.  Welcome to the great state of Ohio.